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Welcome to the Multiple Chronic Kidney Disease e-Care Plan Project Page
Overview
This project will involve development of an open-source SMART on FHIR-based e-care plan application to enable clinicians to better manage patients with MCC, including CKD, T2D, CVD and pain with OUD. The application will be developed in a way that aligns to emerging industry standards with the goal of creating publicly available, scale-able artifacts and services that could be used nationwide.
Project Purpose
The Development of an FHIR (electronic) e-Care Plan, application, and clinical models for persons with chronic kidney disease and multiple chronic conditions
Project Objectives
- Develop & test a SMART on FHIR e-care plan application
- Create clinical information models (CIM) using existing CKD data elements & standards
- Develop e-care plan application and implementation guide (IG) for point of care data review/entry
- Implement & evaluate the e-care plan application in diverse clinical settings in patients with MCC, including CKD
- Establish an e-care plan repository and development collaborative
- Expand the draft e-care plan application & IG to include cardiovascular disease (CVD), type 2 diabetes & chronic pain
- Expand the CKD data elements & CIMs to consider additional conditions
- Revise e-care plan application & IG to incorporate expanded DESS and pilot test feedback.
- Disseminate all project deliverable through open source channels
Project Scope
- Identify use cases to support the documentation and exchange of MCC eCare Plan data within EHRs and related systems;
- Identify, develop, and prioritize the necessary MCC data elements, clinical terminology standards, clinical information models (CIMS) , and HL7® Fast Health Interoperability Resource (FHIR®) mappings that will enable the standardized transfer of data across health settings;
- Develop and test an open-source clinician facing SMART on FHIR eCare Plan application for managing persons with MCC; and
Develop, test, and ballot an HL7® FHIR® Implementation Guide based on the defined use cases and MCC data elements
Project Goals
- Promote the interoperable collection, use, and sharing of comprehensive, person-centered health and social data across settings;
- Facilitate coordinated, person-centered care planning approaches that integrate the full care team (including the patient) across settings; and
- Build data capacity to conduct pragmatic Patient Centered Outcomes Research (PCOR).
Announcements
Upcoming eCare Plan WorkGroup Meetings
| Date | Time | Topic | Webinar Information | Relevant Document or Links |
|---|---|---|---|---|
Upcoming Testing Opportunities
September 2020 Connectathon
Project Deliverable Timeline
<Suggest the graphic from NIH Kick off presentation slide project overview>
| Deliverable Name | Description | Deliverable Status | Link to Deliverable |
|---|---|---|---|
| 1 | |||
| 2 | |||
| 3 |
RoadMap
Project Contacts
| Name | Title | Organization | |
|---|---|---|---|
| Kevin Abott | COR | NIH | |
| Jenna Norton | PMO | NIH | jenna.norton@nih.gov |
| Saadia Miran | NIH | saadia.miran@nih.gov | |
| Tom Hicke | PM | Cognitive Medical Systems | thicke@cognitivemedicine.com |
Recent space activity
Space contributors
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