Data Capacity web banner

The Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions was a two-day workshop with the purpose of convening experts from diverse domains to:

The table below includes the meeting materials from that day. To see a full workshop event details and agenda click the link here.

DateMeeting NameDescriptionMeeting Materials 

 

Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions

Background reading: 

The TEP Meeting White Paper is an environmental landscape review of AHRQ/NIDDK e-care plan related projects

The Altarum Care Plan Report is a report on the variety and merits of care plan templates and regulations in use, including implications for information technology 

 

Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions

Putting the Project in Context: Building Data Capacity to Conduct Pragmatic PCOR by Developing an Interoperable Electronic (e-) Care Plan

Arlene Bierman, MD Agency for Healthcare Research and Quality (AHRQ) 


 

Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions

Putting the Project in Context: Building Data Capacity to Conduct Pragmatic PCOR by Developing an Interoperable Electronic (e-) Care Plan

Jenna Norton, M.P.H.  National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

 

Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions

Defining Care Planning

Malaz Boustani, M.D., Indiana University

 

Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions

Primary Care

David Dorr, M.D., M.S., Oregon Health & Science University 

 

Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions

Social Work

Nicole Ruggiano Ph.D., The University of Alabama

 

Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions


Long-term Services and Supports

Nancy Kusmaul Ph.D., LMSW, University of Maryland, Baltimore County

 

Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions

Shared Care Plans: Nurses, Physicians, Patients

Patricia C. Dykes D.N. Sc., R.N., FACMI, Brigham and Women's Hospital/Harvard University 

 

Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions

Background on Key Data and Knowledge Standards

Clem McDonalds, M.D., National Library of Medicine

 

Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions

Data and Knowledge Standards for eCare Plans 

Evelyn Gallego, M.B.A., M.P.H., CPHIMS, EMI Advisors LLC

 

Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions

Data Standards for Social Determinants

Sarah DeSilvey, APRN-C, Northwestern Medical Center

 

Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions

Data Standards for Chronic Kidney Disease 

Theresa Cullen, M.D., M.S., FAMIA, Regenstrief Institute, Inc

 

Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions

Data Standards for eLTSS

Elizabeth Palena Hall, MIS, M.B.A., R.N., Health Resources and Services Administration

 

Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions

HL7 FHIR Care Plan Connect-a-thons

Dave Carlson, Ph.D., M.B.A. 

 

Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions

Pharmacy Care Plan

Shelly Spiro, R.Ph., FASCP, Clinical Cloud Solutions, LLC

 

Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions

Nursing Care Plans 

Laura Heerman Langford Ph.D., R.N., Healthcare Services Platform Consortium

 

Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions

Managing Diabetes: Clinical Perspective 

Neda Laiteerapong, M.D., M.S., University of Chicago 

 

Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions

Managing Cardiovascular Disease (CVDs): Clinical Perspective 

David Schopfer, M.D., University of California, San  Francisco

 

Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions

Managing Pain and Opioid Use: Clinical Perspective 

David Thomas, Ph.D., Office of Research on Women's Health